Jesy Nelson slams ‘unfair’ SMA rollout as star heads to parliament for crucial debate
Jesy Nelson criticises ‘postcode lottery’ of SMA rollout
Jesy Nelson has criticised the “unfair” rollout of spinal muscular atrophy (SMA) tests, likening it to a “postcode lottery”.
Her daughters, Ocean Jade and Story Monroe Nelson-Foster, were diagnosed with the rare genetic condition earlier this year.
Nelson launched a petition for the inclusion of the SMA test, which has since gained over 150,000 signatures.
The petition is scheduled for a parliamentary debate on Monday, 22 June, which Nelson will attend.
She expressed concern that the current rollout would only cover 72 per cent of England, meaning some babies would not be screened based on their location.
